Body Image · Chronic pain · DISH Disease · My Journey · Pain · Spine Surgery · Surgery

Body Image

As I took a picture this morning to send to my friend , she wanted to see how my spray tan came out, I saw a how flawed my body was. I was a spray tan virgin until I had my cherry popped yesterdayūüėāūüėāūüėā.  As you can imagine from having all the surgeries that I’ve had I’m full of scars and my body is disproportionate. When you look at me my left side of my body it is higher than the right .It bothers me because it makes one of my breasts hang lower than the other. In the scheme of things it really doesn’t matter because I can still walk. As a woman mentally sometimes it fucks with my head. It’s because I am missing ribs on the right side and I have a titanium one this makes me off kilter. Everytime I look in the mirror I focus on that  horrible year in my life of the operations ,rehabs, suffering and infections. I need to make new memories which I’m trying to do. It’s not like when I see the stretch marks on my belly and I think wow I have two beautiful children and I’m blessed. And although my back is scarred from one end to the other I don’t see it that often. I think it’s ugly but I’m starting to replace it with beautiful muscles. Body Images something that I struggle with because it was ingrained in my mind as a child from my father that you had to be perfect and I was just never good enough. Today I’m just blessed I can walk and I’m thankful for the small things in life but this morning when I took that picture it just hit me a little hard. I sometimes wonder what other women have for body image issues.  do they see what I see when they look in the mirror? 

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Chronic pain · DISH Disease · Family · Fitness · Isagenix · Life Coach · My Journey · Pain · Setbacks · Spine Surgery · Uncategorized

Isabody Challenge Essay

 

This is the essay I just wrote for My isabody challeng. It’s not that great. let me know what you guys think.

 

I was sick and tired of being sick and tired. It was time to take back control of my
life. How had I become so lost? In September of 2016, I decided, enough was enough. I
was determined to become healthy, even if it killed me. I started walking every day,
telling myself, ‚Äúbaby steps‚ÄĚ. I lost 40 pounds on my own before I made the phone call in
January 2017, to my inspirational friend Sarah, who had been on Isagenix for a few
months. I had been secretly stalking her on social media and I knew I needed help. At
170, I hit a plateau and still had no energy. Never asking for help has always been my
downfall and I have always put others before me. Making Carie a priority and giving her
some self-love was very difficult at first for me to do.
The first day of the rest of my life was filled with so much energy that it was hard
to believe. I had to ask myself, ‚ÄúIs it all just a dream???‚ÄĚ No Carie, this is now your
reality and you are so worth it. On the first day on Isagenix, I headed straight to the gym
to meet Sarah. Weightlifting and cardio kickboxing was on that day’s agenda. In my
rush, I neglected to take my morning medication. Sarah was delivering my first box of
products that I ordered from her and I still had doubts about it working. I knew it couldn’t
make my life any worse because the last 10 years had been filled with chronic pain. As
we walked to her car, exhausted from the effects of no pain medications, I ripped open
my magic box and tore into a Lemon Passion Crunch Isalean Bar. It was delicious. I
wasn’t so tired anymore. That same day I took my two dogs for a walk, had a Isagenix
Shake, and went back to the gym with my daughter because I was full of energy. After
the first week, I thought there was no way these products were real. They couldn’t have
changed the way I felt that quick because I had been in a bad place physically and
mentally for so long.Things were so stressful. I was angry at the world and I had lost
myself. I knew I never wanted to lose myself again.
On January 29, my oldest son entered a rehabilitation program for drugs and
alcohol. It was time to focus on my 14 year old daughter, my husband and myself. I
needed to focus on Carie first and it started with stepping outside the box, a challenge.
On February 6, I joined the Isabody challenge. The end date was perfect for me
because it happened to be the 1 year anniversary from my last spine surgery, where I
weighed 210 lbs. I have had 20 surgeries in 10 years, 9 which have been on my spine.
I am at an advanced stage of an incurable disease called diffuse idiopathic skeletal
hyperostosis. In short, it calcifies my ligaments, grows bone spurs on my joints and
sometimes paralyzes me. I have never let it stop me and never will. This challenge was so important for me because it was going to push me to a whole new level.
Having many health issues over the years, I had not been eating properly for a
long time. Breakfast was a meal I avoided. Over the last four months, my lifestyle has
changed I now start my day with an Isalean shake and my ionic supreme (Happy Juice).
In the last 13 years, my family was lucky if I cooked one meal a month because it
caused me so pain. Now, I cook every night and I am so proud of myself.
I have had so many firsts in the last four months, I have stopped counting. I
finally know what I want to be when I grow up; a life coach. I love helping others
become healthy and I’m now doing that every single day; building a team. I want to help
those who suffer from chronic pain and let them know they do not have to live the way I
have lived for the last 12 years. That with a proper nutrition program and exercise,
things can change. I am not saying it is going to be easy, but it is going to be so worth it.
I want to take you from the couch into the land of the living again because that was my
life for so long. When you are lost, I want to help you find your spark. Someone very
special showed me that light in Isagenix and its tribe of people and I want to do the
same for others. I want to help others find their light and let them know, that they too,
can become the best version of themselves. Isagenix has completely changed my life,
in more ways than I ever could have imagined. Most importantly, I have finally found
myself after so many years of feeling so lost and I could not be more thankful for the life
changing opportunities Isagenix has given me. I am loving life and could not be more
excited for what the future holds.

Children · Chronic pain · DISH Disease · Family · Lost · My Journey · Setbacks · Uncategorized

Thoughts

58bcdbde5138c0c786cb1952d95e35edToday My son and his girlfriend brought me to have a Lido-cane infusion at the hospital. I swear that stuff is like truth serum if they only used it on criminals things would go so much easier.¬† It takes about an hour for it to go into my system and one of the nurses has to sit with you the whole time.I really love the nurses there. They care and it is a one on one counseling session for a whole hour.¬†¬† I completely lost it while i was laying there in that sterile hospital bed. I started to sob like i have not done in so long.¬† I am having such a hard time accepting that eventually I will be paralyzed. I try never to say it or even to think about it for that matter but it has been weighed on my mind. I am so fucking scared.¬†¬† They had my 19-year-old son come in and hold my hand to calm me down and we cried together.¬†¬†¬† He reminded me that he has seen me a lot worse that i was today and that even if I am paralyzed I will find a way to succeed.¬† At one point he told me what an amazing person I am because of how I always help other people and now it is time to let other people help me.¬† He said, ” Mom people alway praise how great my brother, sister and I am.” ” We did not get like this on our own. You did it.¬† You raised us to be this way and it takes one hell of a strong women to go thru what you have been thru and still have amazing kids.”¬†¬†¬†¬†¬†¬† He kept wiping my tears off my cheeks.¬† In my mind I was thinking how I was the luckiest mother on the planet to have this exceptional child. What did I do to deserve these kick ass kids.¬† Don’t get me wrong they push my buttons sometimes but I would not change anything about them.¬†¬†¬† My son made everything all better. I wish that it could have been my mom sitting there holding my hand telling me that everything will be alright. In my heart I know that it will be but I just wish my Nana was still alive so she could make me a cup of tea and call me her angel pie once more.¬†¬†

I have so many emotions running through my head.  When we got home from the hospital I took a nap then my best friend came to see me. We made the dreaded list that I have been putting off forever. At 40 years old who wants to have to go see a lawyer about writing a will, not me.  I need to go talk to my foster parents about some of my financial concerns and fix my medical proxy again.   I remember 11 years ago when they first explained this disease to me I could not wrap my head around it so I had to make my best friend my medical proxy. There is no way I could ask my husband to bear the burden of pulling the plug. I do not even think that he would. He loves me so much that he would keep\ me alive forever. I just fucking hate this bone disease. To know that is going to fuse all my joints together slowly but surly. It is happening so rapidly in my spine to me having a spine operation is like getting your oil changed in your car.  I never really tell anyone how I feel, You who read this are the only ones that know.

This weekend we are taking the kids to the mountains to our little getaway place.¬† I want to move there.¬† I am going to ride my 4-wheeler to my favorite spot and enjoy the silence.¬† Take some fabulous photos.¬† I am going to bust out my new chainsaw and cut up wood just because I can.¬† I love that thing. My neighbor up there calls me skidder Bitch. I think it is a riot.¬† Then if I am still stressed out I am going to get out my rifle that i bought myself that has barely any kick back and do some target practice.¬† Most of all I am going to enjoy the time with my family and just be.¬† This will be the first time in a year that my 22-year-old step son has been up to our place.¬† He has six months clean and sober and I am so fucking proud of him.¬† I love that kid to the moon and back.¬†¬† My daughter is going to be riding her new dirt bike she got for Christmas for the first time I am wicked excited for that. I can’t wait to ride it either.¬† We are also taking my friend’s son who is 14. He is having some problems in and out of school. I am hoping to talk to him so i can find out what is going on before he takes the road that I traveled when I was his age.¬† I love that we disconnect from the world when we are there since there is no phone service or internet. It is great for the kids!!!1525638_10151883404020848_1666749687_n

Chronic pain · DISH Disease · Lost · My Journey · Setbacks · Surgery · Uncategorized

Unsure

I’m not sure how I’m going to do it yet but I am you going to do it. I will get it done. Not sure how much more I can handle with out falling apart . I think I’m about to break. I’m about to explode inside. I just need to escape. Not that escaping fixes anything but I just feel like I need time to breathe. So I knew that the news wasn’t going to be good news but it sure wasn’t what I expected. I wasn’t expecting that I needed my neck operated on again. I’ll admit that I’m scared. ¬†Scared of the unknown. ¬†Scared that I won’t continue to be healthy and heal again. But I know that I’m strong so I’ll bounce back. What truly scares me the most is not being able to read and write after my surgery. The last surgery I had it took 3 weeks for me to be able to read and write again .So this time I imagine it will be even longer and I hate being not being able to read and write. It’s the only form of communication I have when I can’t talk . Having that taken away from me, it feels like I lose my power. Maybe I’ll have to take up sign language. So now knowing that I need my neck operated on top of the fact that the next step down from that will be my thoracic spine because that has bone spurs growing into my spinal cord. He also told me that my lower spine has lost all its disc height and there’s no more fluid left. That¬†it’s starting to fuse together on its own there’s nothing they can do about it expect give me some steroid shots for the pain which that’s useless. So I’ll just continue to exercise and do ab workouts to strengthen my muscles so that way all the pressure is not on my bones. It is so hard to stay positive when all of this stress is weighing down on my mind. ¬†Which makes the simplest ¬†of simplest tasks that much more difficult. My brain is constantly going a hundred miles an hour . I can’t even focus. Then¬†all the stress it puts on my family. What are they going through? What’s in their minds. My husband has a hard time communicating on how he ¬†feels which to me is a¬†¬†problem because I really want to know what he thinks about it. Obviously I’m going to go into my next surgery more prepared. Each time I have a surgery I’m more prepared than I was the last ¬†time . I have a team of people in place that are amazing. With them I¬†¬†put together my rehab, visiting nurses, my plans, my living will, (in case something happens). ¬†I have a medical proxy ¬†and I have a pain team in place. At this point I’m stronger than I’ve ever been going into an operation. I feel the healthiest I’ve ever been. My recovery time should be ¬†pretty quick. I’m just so scared of the unknown. I’m trying not to focus on the what ifs. How do you explain to your friends what’s going on in your mind. You just can’t. I don’t want to hear the¬†¬†I’m Sorry’s or I feel so bad for you. I don’t want people to Pity Me. I just want to surround myself with positive outgoing people. People who want to strive to¬†do the best they can do when all the odds are stacked against them.

And me being the nut that I am, I asked a neurosurgeon if I can run a marathon. He told me no but I can do 2 to four mile runs a¬†week so I’ll take that. I guess I’m just going to have to live my life like I’m not having the surgery . I’m going to keep planning things like I have a healthy body. I have such a hard time accepting that I’m not normal but I don’t have a normal body. I keep pushing myself and pushing myself to the limits. I’m exhausted every day. ¬†Every day I wake up in excruciating pain ¬†and I don’t think anyone truly understands what it’s like to be me. It’s so hard trying to take care of my 3 kids and keep my marriage going on top of ¬†focusing on myself. ¬†Trying to just be happy. I just feel so lost right now

Chronic pain · Isagenix · Lost · My Journey · Setbacks · Spine Surgery · Surgery · Uncategorized

Setbacks

May 15 2017

¬†Setbacks, we all have them and i just had a huge one. ¬†It’s so frustrating. I have a goal . I want to become a finalist in something called the isabody challenge. I’ve been working so hard towards it for the last for months and it is only two weeks away.It’s been so difficult.

When you’ve been down and out for so long ¬†your body starts to shut down. I only ate once a day for a long time. Sometimes¬†I would go all day without eating . Now I am trying¬†¬†to eat 6 times a day. ¬†It is so tough¬†and meal prepping sucks. ¬†It kills my back to stand in one spot for¬†long periods of time to cook all that food for the week but I have to find a solution to this issue . ¬†I been¬† working on me as a whole. Getting healthier, working out everyday, meeting new people, ¬†trying to be a better version of ¬†myself while still taking care of my family and animals. Managing everything is crazy and then my setback came in the form of my MRI results.

¬†I can always tell when somethings wrong with my spine. I can tell because my perception of things is off. My body doesn’t work right, its the little things. ¬†2 weeks ago I got into 2 ¬†car accidents in one day. They weren’t bad car accident I missed judged pulling into the parking lot by like an inch and then a woman stopped short in front of me as I was pulling out of a side road .She jammed on her brakes to let another car out and I rear ended her. So I knew something was hitting my spinal cord because my reaction time was a few seconds off. But a few seconds could cost me my life .

I didn’t want to go get my MRI results because I’ve been doing so well lately. Its like I finally got a chance of what it feels like to have a healthy lifestyle. A taste of the good. ¬† I did not want to ruin that by having another spine operation. So I waited till after I went to strong camp even though I knew that ¬†results were in. I’m trying with all my might¬†not to let it get me down. At the end of the day its in the back of my mind weighing on my soul because I know I’m going to need another operation. ¬†In my heart I feel like¬†I’m healthy so the recovery shouldn’t be too bad but I know what it entails. I know that now when I wake up I’m not going to be able to read or write ¬†and it is going to take longer than last time to come back. ¬†It scares the ever living fuck out of me. ¬†I just keep pushing the fear out of the way!

I sat in the parking lot of the doctors office with big fat tears rolling down my face as I read the MRI results. My lower back is messed up ,which I already know that and not a big deal. I ¬†have a tear in my disc, spinal stenosis, , disc ¬†protrusion, some narrowing ,and some other stuff. No big deal everybody has something going on in the lower back. The thoracic spine which I just had an MRI in 2016 and 2015 now states T5-6¬† disc Protruding, T6-7¬†mild spinal cord impact with some protrusion.¬†Okay no big deal but here is where it gets tricky, T 11-12 I have already had operated on now went from mild to moderate spinal cord compression with¬†more protruding and bone spurs growing. ¬†The cervical spine they could not see because I have so much metal in there already. ¬†I will need another test for that. So I find out more results next week when I go to the neurosurgeon. I’m trying not to let it bother me. ¬†Just paste on the fake smile . I’m just going to keep on keeping on.

Birthday · Chronic pain · Family · Love · My Journey · Uncategorized

My 40 Birthday

Today is my birthday and I’m turning 40.¬† 40 is the new 20. A year ago if you asked me how I felt about turning 40 I would have said sad, down, and depressed One more year goes by that I’m full pain.This year I feel healthy, yes the pain is still there, but its not all that I focus on anymore. I’m focusing on creating a new me. Its like I’ve become a whole new person. Every time I look in the mirror I see someone new staring back at me. I sometimes can’t believe that it is really me. I’ve lost 70 pounds .I’ve gained some muscle mass and I look healthy. I know its been hard on my family having the new me because now I’m full of energy. Where before I lived my life basically on the couch. I feel like my brain was in a fog and I was just getting by day to day. I was not really living. When I think back I realized how much I do not remember. I don’t remember a lot of my daughter growing up even though she lived in the same house. She’s 14 now and I don’t remember a lot of things. I have the pictures to prove that I was there. That I did the best that I could but its sad how the pain blocked on my memories.¬† So this year I’m going to make new memories with her and they will be in printed on my brain for the rest of my life. I’m going to make sure of that. Its been a rough journey. I’ve lost a lot of friends over the last year but then again where they really friends or just acquaintances. My old friends are still they’re the ones I’ve had for like 20 plus years just the new ones I gained while i was sick have started to do dwindle off.¬† We are just not that close anymore. Its okay they are just not meant to be in my new life.

So Happy Birthday to me. I am going to treat myself to a spa day. I deserve that.

“I’m on the hunt for who I’ve not yet become”

Chronic pain · Lost · My Journey · Surgery · Uncategorized

Suffering

I just went to counseling and we were talking about suffering. Why is it that I don’t think I deserve a good life¬†¬†and when¬†good things ¬†happen to me why do I feel like I need to suffer. Why do I feel like I don’t deserve good things. Why am I not worthy. These are just some of the questions that run through my head on a daily basis. Probably most of it stems¬†back from when I was a child but shit I don’t have¬†time to go back that far. I’ll be in counseling for the rest of my life. ¬†I should start with the recent years right? What the hell. ¬†I think it’s because every time I start something that’s good in my life I get¬†sick or I need an operation. Operations where something could go wrong and they always do.¬†If there was side effect to¬†get I would get it. Every time I started something I would have an accident and be forced to stop it. So after years of this happening it was a common occurrence and it became ingrained in my brain that I just have to suffer for some reason. Well this is not true! ¬†I do not deserve to suffer . I do not deserve the things that have happened to me. I deserve to live a happy life.To be healthy and¬†whole. I deserve to feel alive to know that when I start something that I can finish it without having any negative thoughts. In order to do this I need to change my mindset and changing one’s mind-set is a hard thing. After being sick for so long all you think about is sickness. Now I don’t think of myself as sick. I think of myself as healthy. I deserve to have good things happen in my life. This suffering has come to an end.

Car rides · Chronic pain · Control · Dad · Lost · My Journey · Strongcamp · Uncategorized · Woods

Control

 

¬†When you are¬†in chronic pain it is hard to give up control.You need to control everything around you because you’re trying to control the pain. You try¬†to cope the best way you¬†knows how. You’re trying to distract yourself. You’re trying to take away the pain. YOU ARE IN FIGHT OR FLIGHT MODE . Constantly¬†struggling with a¬†reality that nobody sees.¬† For a long time I associated driving with excruciating¬†pain . ¬†I get car sick, ¬†after 10 minutes in the car my whole body stiffens up and my back feels like it’s on fire. ¬†It makes me want to rip my head off. For a long time I had to lay down in the back seat and I could never sit upright. I would put off going on long trips and I sacrificed a lot of things for over 10 years.¬† I would always drive if we went anywhere because I would hope to distract myself from the pain.

This past weekend I went away with an amazing group of women to StrongCamp New England. We decided it was a good idea ¬†to drive together and I was not the driver. This was probably one of the hardest things for me to do, giving up the control. Immediately my brain associates this car ride with pain so it puts me in a funky mood. The amazing woman who drove us drives on the slow side which drove¬†me crazy. But I’m learning to be a better person so once again have to learn to keep my mouth shut and give up that control. She is a great driver and has never had¬†¬†a speeding ticket. I’m so proud of her she got us there safe and sound in the pouring rain. I drive 90mph everywhere I go. ¬†By the time we got to the hotel I was miserable. Even though I sat in the front seat I was car sick, had a migraine and my back was screaming out in pain. I knew no amount of medication was going to take my pain away. I would just¬†¬†have to suck it up and deal. Try¬†my best not to be a bitch but once my body reaches that pain mode my brain start spinning out of control.¬† After an hour or so I just dropped it(my pain level) myself with meeting the rest of our team, decompressing, and things weren’t as bad.¬†

The ride home was a different¬†story… my body was wrecked from a hard long weekend at strong camp. My mind was clear but full of pain, emotional and physical.¬† I’m all about getting from point A to B the quickest, fastest and ¬†most direct route possible. ¬†Of course there was a mishap with the GPS.¬† I knew the GPS was wrong on which way to go because I’m like a human compass. ¬† When you have three other women and the GPS telling you you’re wrong you begin to second-guess yourself. ¬† Let me back up a bit, I’m only like a human compass because of my ¬†father. ¬†When I was little he would¬†take us girls out into the woods and leave us there then tell us to find our way home. As a young child it was scary as fuck. Especially knowing that I was responsible for my two younger sisters. Later on in life I learned that he was nearby watching but I never knew that back then. Twice at the age of 6 I got lost in the woods with my little sister in tow. One of the times she fell and broke her arm. I’m not sure how I found my way back. I think it was a pure miracle but I remember her crying the whole way and ¬†I remember thinking Dads going to be really mad and beat me for this one. So in my mind as we’re getting lost on the highway all this is running through my head making my headache 10 times as i’m trying not to puke. My body is screaming out in pain¬†and I am going to pee my pants at any moment.¬†I’m trying so hard not to be a total bitch. Giving up control of a situation has been one of the hardest things I have ever learned how to do. I’m not sure anyone else in that car realized my internal struggle I don’t think they realize how deep it goes. I am not even sure I think I realize how deep it goes. Us taking the wrong Highway put another 45 minutes on the drive and my Everlasting pain which makes me go crazy and¬†sets off me having anxiety attack. My anxiety attacks gets so bad that I want to jump out of the car there is no medicine… GIVING UP CONTROL IS A HARD THING TO DO …. IT IS A WORK IN PROGRESS BUT I AM DOING IT!

Addiction · Chronic pain · Family · Fitness · Love · Uncategorized

Strongcamp

110533_20130813_210331_black.squareI took you with me little bird!!! Your wings were clipped to soon. Don’t worry I carried on my back and held on to you with all my might. ¬†I thought of you every step of the way. You smile, your laughter your tears your never ending pain don’t worry little bird I have your back. I did not let you down my friend. ¬† I did what you could not but would have.. Don’t worry I will make him proud. I have your back little bird, I will take away his frown. I will make sure he knows how hard you fought but that you had to go. ¬†Just know you are always with me little bird I will never let you down.

I LOVE YOU JESS!!!!

Chronic pain · DISH Disease · Family · Surgery · Uncategorized

Road Blocks

Yesterday I sat thru a 3 hour long MRI by the time I was done I was in so much pain. ¬†Laying in the same position sucked ass. ¬† It was for my whole spine and I honestly do not even want to know what the results are. ¬†I have been feeling amazing for the last 6 months and I feel like the higher powers that be are teasing me. ¬†I know that I am going to need another operation I can honestly feel that something is off. ¬† My perception of things is off it is like there is someone back there pulling strings with my spinal cord. ¬†How do I tell my family that I am worried. I don’t… ¬†I sit here and suffer in silence alone because this will be my 11 spine surgery. ¬† After my last spine surgery in May 2016 I decided that I was sick and tired of being sick and tired. ¬†So I started to exercise slowly . ¬†Each and everyday I dragged my self out of the house to walk. ¬†Then I changes my eating habits boy what an incredible difference that made. ¬†I joined this program with an accountability group and found an amazing group of women, I love it!!! I went from 210 ponds to 145 in 9 months… I have a ton more energy and my pain level cut down as well…. But

On the outside I look fine. Do I look sick. ¬†No I do not. ¬†But what exactly does sick look like. People are so judgmental too. ¬†It’s like I need to walk around with a big sign that says hey “I am fucked up!” ¬† ¬†My friends do not understand and sometimes I do not have the patience to explain anything to them anymore. ¬† I have told them all time and time again that I have a disease that there is no cure for. They just do not get it. ¬†When I have to cancel plans at the last minute because I am in pain and I know that doing what ever we are going to be doing is going to wreck me they get pissed off and take it personally. ¬†Or if I am having a rough day and they are negative I do not want to hang out with them because I need positive people in my life. ¬†I need people to lift me up not bring me down. I can bring myself down all by myself. I have lost a ton of friends over the years but then again were they really true friends? ¬†I guess not.

When it rains out my whole entire body aches and I want to stay in bed. ¬†It takes every ounce of will power that I have to get out. I AM MY OWN CHEERING SQUAD… ¬† I ache the whole day everyday. ¬†No one knows the struggles I go thru on a daily basis but then again I do not know their struggles either. ¬† To push thru the days is all mind over matter because most of the medicines do not work any more and my brain is so much more powerful. ¬†I have been doing so well and now the higher powers gave me a giant ROADBLOCK. ¬†That is okay. I can get passed it. ¬†I have before and I just need to keep remembering all that I have overcome.